ABSTRACT

The 2011 Census estimated that 2.7 crore people have any form of disability in India. Cerebral Palsy (CP) is one of the disabilities recognized by major acts in India. Cerebral palsy is a neurological condition affecting movement and muscle coordination. Assistive devices play an important role in improving the functionality of people with CP. The parents of persons with CP are facing many difficulties with the services pertaining to assistive devices. The present study aims to gather feedback from parents about the service delivery system for assistive devices for persons with CP. Data was collected from 67 parents of persons with CP. The snowball sampling method was used to select the samples. A semi-structured interview schedule was used to collect the data. Three individual interviews and six group interviews were conducted. The recorded data was transcribed and thematically analysed using the predetermined themes. The study’s findings explain the themes related to the parent’s perception of the procurement of assistive devices', customization, cost, repairing facilities, training, etc. The feedback from the parents of persons with CP may assist in improving assistive device distribution, maintenance and services. Keywords: cerebral palsy, assistive devices, parental perspectives, service delivery
Publication date: 01/06/2024

https://ijbpas.com/pdf/2024/June/MS_IJBPAS_2024_8111.pdf

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https://doi.org/10.31032/IJBPAS/2024/13.6.8111