ABSTRACT

Sickle cell disease (SCD) is one of the most prevalent monogenic diseases worldwide; inherits in an autosomal recessive manner. Globally, SCD has been reported in a many countries worldwide. This manuscript focuses on various aspects of SCD that affect people's lifestyles and passes to the next generation due to poor understanding and awareness. The distribution of SCD in tribal and non-tribal populations in several Indian states is discussed. Tharu tribe is the most numerous schedule tribes in the state Uttarakhand, and many cases of SCD have been documented from this region in recent years. During the course of the research, socio-demographic data from Uttarakhand was gathered. The review revealed a significant lack of understanding of SCD among healthcare providers and the general public. When compared to planned care, the emergency setting provided a poor experience of care, with the absence of prompt provision of pain medication being a major worry. When compared to children and adults, adolescents and young people reported significantly worse care experiences in various domains. Keywords: Sickle Cell Disease, Uttarakhand, Tribal and Non-tribal, Socio-demographic
Publication date: 01/10/2022

https://ijbpas.com/pdf/2022/October/MS_IJBPAS_2022_6471.pdf

Download PDF
https://doi.org/10.31032/IJBPAS/2022/11.10.6471